I seem to have this way about me...I tend to be late...I forget things when I do finally walk out of the door...and sometimes I am not prepared for the situation at hand. And I am never ready to walk my children through hospital doors regardless of what they are there for. I give my toddler props tonight. I tucked her sweet little self into bed, after her brother for a change. I wanted to spend extra time with her tonight, away from our normal schedule...just to let her know how brave she is and how lucky we are to have her in our lives. She is very excited about tomorrow, she throws a fit if we mention that we are going tomorrow instead of NOW...and she has her bags packed with all of her favorite things...(she did this herself, all but her toothbrush and toothpaste, which she informed me that she still needs to use when the sun comes up!). Still, I am a mom...and I am nervous. I am her mother, which makes me more nervous! Abbey has the BEST doctors that anyone could have, great family and friends praying and wishing the best, and an entourage that would make HBO jealous. Faith is a very funny things at times like this...it's all or nothing in my book. I either have complete faith that she will be as strong as ever and everything will go as planned with no complications...or I don't and I am no good to anyone. Yes, faith we have...lots of it too. And with that faith, I will still never be ready...prepared but never ready. Good thing I have this one on my heals, leading the way.
June 24, 2010
What can I say...this child, this little 2..almost 3 year old girl is my hero. Some one up above is definitely keeping an eye out for this girl, and I pray that they continue to do so...
I should start from the beginning...Abbey was born at 34.5wks...just a few weeks shy of being full-term, and had a rough first night. All I remember is Bryan coming to me, crying and saying that she might not make it...and they don't know what is wrong. She has 2 separate blood transfusions that night and a bunch of tests run. The next day was a waiting game...with me coming out of my "medical morphine coma", I was learning more and more that our precious baby girl was very ill. By Abbey's second day of life, the doctors were still at wits end with what was wrong with her and by the grace of God, there was a doc there that was done waiting for results. He told us that they were going to do exploratory surgery and find the problem. Abbey was a 4lb trooper. She had Jejunal Atresia, where her small intestine was closed off right after it left the stomach and was much higher up than they have seen. She was fitted during surgery with an ostomy bag and a central line that she would receive parental nutrition through. She had good days and bad days...long days and short days...3 mths and 1 day in the NICU to be exact. After the reattachment surgery and trouble that she experienced with learning to feed and her body with absorbing nutrients, she came home a happy, healthy 3mth 8lb baby...and we couldn't have been the happier!
All was well with the wee one until her 15mth check up...her head growth had gone off of the chart, almost a 20-30% growth in 3 months, and her pedi sent her for an MRI...just to be safe. On the way home, we received the call...Abbey had Hydrocephalus and we were instructed to call a Neurosurgeon...A NEUROSURGEON?!? I was in shock...what was this that she had? Why was he telling me to call a neurosurgeon? The next few hours were spent in conversation with the best Neuro ever. He spoke with me about what was going on and what he was going to do...great guy he is. She had a shunt implant a week later and will have it her whole life. It regulates the flow of CS to her abdomen, to be reabsorbed since it was not in the brain...hints the head growth. Once again, Abbey was a trooper. I cannot begin to understand what this child had to endure...just to live. Since November of 2008, when she had the implant, she has been a perfectly healthy toddler and has even developed above the expectations for her.
So yesterday, I noticed a lump in her groin that worried me...like that takes much with her, and I took her in to her Dr. He referred me to the surgeon, that just so happended to do the first 2 operations on her tummy and central line, and we spoke about what was going on with Miss Abbey. She has a hernia...in her groin, most likely one on each side. She will be undergoing surgery, again, on Thursday the 1st. Apparently, this is common in premies...but I don't think that being common still eases by busy head with her having another surgery. Yes, we know that with her shunt, there could be one, two, many more for her if something were to happen but that goes with the territory of having Hydrocephalus...a life-long condition. So this took me by surprise. Even through it all, with all that she has been through, she is still a trooper. Sitting today, listening to what was being said...and expressing her emotion of not being scared. She is "happy" to be going to the hospital and "happy" about having the wrong turned right. I love that girl...she gets great courage and strength from her sister, who has had her share of hospital time. So yea...this kid...my KIDS are amazing. And with love, prayers, and alot of chocolate, I fear...this will turn out ok. Like I said, someone up above has their hand on this child...my grandpa perhaps...I would like to think so.
June 23, 2010
I know, a few days late and a few dollars short, well, more than a few! This past Saturday and Sunday, the wee ones and I finished up our crafts for Father's Day...a card for daddy, very simple and NC blue, and a few sun catchers for Papa that the kids LOVED making! I was looking for ideas that KMan could partake in and this was perfect! I sat them down with a few sheets of tissue paper and let them have a go with ripping...and ripping...and ripping. Then they pressed the torn pieces down on some Press-n-Seal...(I love that stuff), with a cutout of their hand print, and then glued it to a popsicle stick frame. Abbey wanted to glitter up the frames and so I added a few drops to each side and let her smear away! They both had fun and didn't try to kill each other or myself so it was a good "art day".
June 21, 2010
I am sure that one of us are guilty of it on one day or another...letting the little things slide by under our noses and not going that extra "mile" to get it super clean. "Not Me Monday" was born by MckMama as a way to blog her imperfections and tribulations in parenting...so I will take suit now that I am a "blogger" and most definitely an imperfect parent. So lets begin this "Not Me'ing"...
I certainly did not allow both of my wee ones to run in our very visable backyard with just a diaper on KMan and Abbey in panties, jumping through the sprinkler! They did enjoy the freedom, so I tried not to feel so guilty! And I did not try to justify our lil' princess' "terria terms" for her brothers private parts...for sure, not me. Those of you that know my "term" for that can relish in the laughter of hearing Abbey state this to a few people. So if you blog...get busy with your "not Me" event in your life and link them to her page...or not, if you are not into the linky thing. Catch ya on the flip side. ;) Oh...I will leave one more note...
I certainly did not let Abbey "rock out" to STP with her head-band and her brothers pj's after reading time before bed...nope, not me.
June 20, 2010
For those that know me...writing is way over due, and being as that I LOVE to take pics of the family and all of our adventures together...this is a perfect way to keep a record of the times, so to speak, (or type, I should say). So, I am embarking on this new adventure of blogging with high hopes that I can share, inform, and learn from others with great taste for food, nature, and parenting!